According to the British media 6 days to report, the British girl, grace Liddell, aged 4, suffering from rare diseases almost never know what pain is, be in danger.She tried to take care of parents, called "the world's most careful parents".
Rare diseases was born 12 days fish disease has no effective therapy grace was born in 2007 April, there was a 9 year old brother Harry and 18 months younger brother Charlie, the brothers of physical health.
Mother Emma recalls, 12 days after birth, the doctor told her, grace with Smith al-maghili syndrome.The disease caused by chromosomal abnormalities,Nike Air Max Skyline Womens, will affect multiple body regions, leading to mental retardation, abnormal facial expressions, sleep disorders and behavior problems.
This disease on century 80 time are found in the United States, incidence rate of approximately one in 25000, so far no effective treatment measures.Emma said: "grace was born, I knew there was something wrong, I know in my heart.
.....Heard the doctor said our new baby Smith al-maghili syndrome, this is really collapse.""I don't know what it means, so the search on the Internet, the result makes me scared, all materials are negative.
"Emma said.With great care at night in his head against the wall in soft cloth wall Emma said parents,Puma Mummy Cheap, the couple almost closely for the care of grace.Grace to risk no concept, "as we go along the road, with brother Charlie will pay attention to the car,Puma BMW Shoes Sale, but she can't".
In addition,Nike Air Max TN Men, grace pain points high, "she can hold a hot radiator or the kettle, aware of the pain is too late".Affected by diseases, grace awake at night, which made her depressed, "sometimes we can hear her head against a wall".
Emma said, this will affect the Harry to rest,cheap christian louboutin, sometimes, he turned on the radio, try to cover "noise".In order to solve this problem, the couple had to use a soft cloth to grace the bedroom walls wrap.
"Sometimes it's hard, grace doesn't like anyone touching her, she would suddenly out of control, scream......She can't control myself."Emma said.The optimistic view of talent is a unique touch screen computer "played out" under the care of their parents, grace never hurt, also enter the Galbraith special school.
"(let us take care of grace) to become the world's most careful parents."Emma said.Father Mark said, some with grace suffers from the same condition in computer talented children, grace in schools using touch screen computer also showed a unique talent, "may we have unknown potential, we are trying to find".
Mark said, for the care of grace, the couple spent a lot of energy, "we have learned to adapt to her, but do not know what other people,Womens MBT Tembea Shoes, even relatives can realize how hard it is......Every time we have a backup plan.
.....One minute she (GRACE) still be jubilant dance, the next minute will kneel on the ground ".Despite this, Grace still brings them a lot of joy.Article / Xinhua welcome comment I want to comment micro-blog
Rare diseases was born 12 days fish disease has no effective therapy grace was born in 2007 April, there was a 9 year old brother Harry and 18 months younger brother Charlie, the brothers of physical health.
Mother Emma recalls, 12 days after birth, the doctor told her, grace with Smith al-maghili syndrome.The disease caused by chromosomal abnormalities,Nike Air Max Skyline Womens, will affect multiple body regions, leading to mental retardation, abnormal facial expressions, sleep disorders and behavior problems.
This disease on century 80 time are found in the United States, incidence rate of approximately one in 25000, so far no effective treatment measures.Emma said: "grace was born, I knew there was something wrong, I know in my heart.
.....Heard the doctor said our new baby Smith al-maghili syndrome, this is really collapse.""I don't know what it means, so the search on the Internet, the result makes me scared, all materials are negative.
"Emma said.With great care at night in his head against the wall in soft cloth wall Emma said parents,Puma Mummy Cheap, the couple almost closely for the care of grace.Grace to risk no concept, "as we go along the road, with brother Charlie will pay attention to the car,Puma BMW Shoes Sale, but she can't".
In addition,Nike Air Max TN Men, grace pain points high, "she can hold a hot radiator or the kettle, aware of the pain is too late".Affected by diseases, grace awake at night, which made her depressed, "sometimes we can hear her head against a wall".
Emma said, this will affect the Harry to rest,cheap christian louboutin, sometimes, he turned on the radio, try to cover "noise".In order to solve this problem, the couple had to use a soft cloth to grace the bedroom walls wrap.
"Sometimes it's hard, grace doesn't like anyone touching her, she would suddenly out of control, scream......She can't control myself."Emma said.The optimistic view of talent is a unique touch screen computer "played out" under the care of their parents, grace never hurt, also enter the Galbraith special school.
"(let us take care of grace) to become the world's most careful parents."Emma said.Father Mark said, some with grace suffers from the same condition in computer talented children, grace in schools using touch screen computer also showed a unique talent, "may we have unknown potential, we are trying to find".
Mark said, for the care of grace, the couple spent a lot of energy, "we have learned to adapt to her, but do not know what other people,Womens MBT Tembea Shoes, even relatives can realize how hard it is......Every time we have a backup plan.
.....One minute she (GRACE) still be jubilant dance, the next minute will kneel on the ground ".Despite this, Grace still brings them a lot of joy.Article / Xinhua welcome comment I want to comment micro-blog
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